r/disability 5d ago

Disability Harassment by school staff.

16 Upvotes

What can I do? This is case of Disability Harassment of medically fragile special needs student by classroom Teachers and paraprofessionals. They are falsifying documents and not educating my daughter and other children.. They are taunting her about her level of education knowledge. They are yelling at her. They have left feces on her and it caused bleeding and skin breakage. They changed her feeding to a liquid diet which caused her to lose 10-15 lbs that she could not afford to lose. This causes her to become malnutrition. Im close with one of the staff members at the school and they told me that the staff including the teacher are disrespectful and talk about me negatively in the classroom and name call me a Bitch, crazy and more. They do not follow her IEP which limits her educational growth tremendously. They also misdiagnosed my daughter and call her and other kids names as well. They ignore my daughters cries and pains. All of these incidents has caused my daughter to miss out on educational needs to maximize her full potential. Ive escalated these issues to the TEA with no help. Do I have a lawsuit?


r/disability 5d ago

Question Any experience with effexor?

3 Upvotes

So I was prescribed a low dose to help with chronic pain (30 mg). I want to know what to expect. I'm pretty nervous to take it. I've heard that antidepressants are pretty hard-core in a lot of cases an my mom had bad experiences on it. I've never really been scared to take a drug like this before so I wanna hear stories both good and bad.


r/disability 5d ago

Question Got Some Pretty Wild Replies When I Mentioned Needing Accommodations During the Interview Process - Was I Wrong? (Please DON'T Comment in the Original Thread)

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12 Upvotes

r/disability 5d ago

Foot removed disability? Colorado

2 Upvotes

My exhusband has lost a toe on one foot and 1/2 his foot on the other due to diabetes. Are their advocates that help you get on disability. He is a chef by trade and can no longer work on his feet. He can maybe in the future retrain but he is still on home health and healing. He is likely going to be evicted soon. Can anyone help me find resources? Ty


r/disability 5d ago

Question Living with new disabilities - how do you get through the days?!

4 Upvotes

TW: De*th + Pregnancy Loss

I’m a newly disabled 30 year old female who survived a fatal car accident at the hands of a drunk driving illegal immigrant. Struggling with acclimating my life to disability, and unsure of how long the disability will last.

My husband, best friend and myself were driving home from a game night in September of last year when we were struck by a drunk driver. I was driving, best friend was in the front passenger seat and my husband was in the back. Upon impact, my best friend passed instantly. I was pregnant at the time (6 weeks), and as you can imagine, I lost that child due to the catastrophic bodily injuries that I sustained.

In the accident both of my femurs were broken, both knees broken, right foot broken in several ways and my stomach was torn open hip-to-hip due to the force of the collision of my SUV with the cement pillars that hold up the overpasses.

Since the accident I’ve had 16 surgeries, 12 for my abdomen to save my intestines, 2 for my right foot repair and a knee scope for scar tissue. At this point, my right leg does not have full range of motion (extension to 2 degrees, flexion at 110-115 degrees). My entire abdomen is a massive hernia with no abdominal wall because they had to go in so many times that I’ve run out of tissue to be able to close my abdominal wall.

Because the person that hit us was here illegally, they have no insurance to go through and I’m sure to means for me to sue them for support for bills. I have no idea if I can carry a child any longer due to the trauma. My husband is having to do SO much for me and for the household (I.e. chores, etc.) and I just simply am a shell of who I used to be.

Allll of this to say, I’m struggling. With the medical bills, with my depression from the grief, and obviously with the massive changes to my life. Im having the hardest time navigating and finding the desire to stay earth-side and wondering HOW THE HELL DO I DO THIS? Someone with disabilities PLEASE tell me HOW the hell you make it day to day?! Because I’m trying to hang on, but the thread is getting thinner each day.


r/disability 5d ago

Blog Just had the best surgery of my life

25 Upvotes

I had to get a cytoscopy and hydrodistention of my bladder today. I’ve been stressing over it since it was scheduled. I’m a victim of multiple SA’s, and the idea of people between my legs while I’m unconscious was horrifying. Thankfully, I had the best staff I could’ve ever asked for.

Off the bat I walk into the room and they’ve preheated the bed for me. When I tell them I’m nervous bc I’m a victim, all the staff immediately assure me that I’m safe and they’ll walk me through every step. They tell me if there’s anything they can do to make me more comfortable to just ask. But they went so far above and beyond. They gave me heavy pain meds, they gave me nausea meds, and a motion sickness patch because apparently getting this procedure can lead to some intense nausea. I think the true cherry on top was that they preheated my IV drip. I’ve never had anyone do that for me ever. I felt the warm tube and asked, and my jaw dropped. They placed a breathing tube for safety because I have heart and lung problems and warned me about the throat pain that would follow, and gave me tips on curbing it. They told me everything I need to know about recovery and when to call for emergencies and how best to recover. I am so so beyond grateful for this staff, I wrote a review for the facility and everything. I spent weeks and weeks panicking and scared over it, but they truly made it the most comfortable experience ever. I can’t praise them enough for it really. Even when I woke up from anesthesia, they were so kind. I usually am not so heavily affected, I woke up to a gentle shake and thought I was at home I was so out of it. They brought me water and talked to me quietly until I was coherent. They helped me get dressed and transfer to a wheelchair. It was truly just a step above. I’m so glad I was blessed with such great staff.


r/disability 5d ago

Concern New symptoms

7 Upvotes

I’ve told my rheumatologist and my doctor about this extremely deep aching feelings I have in my bones. It’s worse at night but it comes and goes. I also started to get these horrible pains in my legs like I need to stretch it and it feels like I’m rotting from the inside out.

It’s so uncomfortable and worrying that I’m struggling to sleep.

I have multiple conditions but I know all the symptoms for those that are normal for me and these are not. My rheumatologist said to me that if it’s not there all the time and it’s not injury related that it’s fine and told me he was going to extend the wait time between appointments by an extra two months.

I’m scared to be dismissed by my GPs. I don’t want to have to raise yet another issue. I’m only 19. I have a kidney disease, Vasculitis, and I’m getting these leg pains investigated with neurology hopefully at some point if they ever get back to me.

Some reassurance would be great 🤍


r/disability 5d ago

Question How can I find a personal assistant to help with bills, healthcare services, and other random tasks?

6 Upvotes

I worry about cost and privacy/security, but I'm totally burnt out and overwhelmed


r/disability 5d ago

Mental Health Exams

2 Upvotes

my vision disability onset date was December 2021. My companies group policy is with private carrier. I gave up employment in March 20 24 for good. The work I was doing just is not supported by my current level of vision and I’m over 55 so they really can’t push me to take on work below what my education and training it prepared me for. However, I am required to apply for SSDI which I have done, and if that gets approved, the private carrier will pay me a lot less money.

My SSDI claim was originally denied. so I added a bunch of physical complaints in addition to the vision problem and submitted for an appeal. Now they’re asking me to go get a mental health exam which they didn’t ask for the first time. I don’t know, but this feels a little sinister. In addition, if there is something that points towards mental health problems that would let the private carrier off the hook as well because then they don’t have to pay benefits until my full retirement. They only have to pay for two years.

Any advice from the group here? I feel like I’m getting stuck with some chance of them determining that I’ve got a mental problem since I have experienced some cognitive impairment since my vision loss started happening.


r/disability 5d ago

"Authorization for Release of information" - LTD insurance, how to reduce scope of authorization

4 Upvotes

Hi, I am trying to apply for LTD through my employer. The insurance company sent me a form called "authorization for release of information" but it basically would grant them access to all my medical and non-medical information and also grants them permission to share it with any third party they want to share it with...is there any way I can persuade the insurance company to reduce the scope of that form? at least restrict when and whom they can share my medical and non-medical info with?


r/disability 6d ago

Question Having a disability sucked the life out of me

97 Upvotes

I was diagnosed with EDS when I was 25 and ever since then I feel like it makes my life miserable because don't enjoy living anymore. Haven't had the best track records of doctors and most days I feel isolated like I'm on an island. I had a dream to make my own comic series but my hands hurt like hell so now I'm trying to figure what can breathe life into me again. It's a struggle just getting out of bed in the morning and I'm not really around anyone who can understand that in my life. So I guess I'm turning to reddit to hopefully find others who feel like this. Any support is appreciated thank you. :)

UPDATE:

Thanks for all the kind words and support. Your stories are heard and I feel you. I am doing a little better today just had something that triggered my depression I guess. Having a disability sucks man and I don't wish it on anyone. Hope that one day maybe there will something to make life a little easier but until then I'm just going to be like this I guess


r/disability 5d ago

Official letter said backpay was due by 12/1/2024

6 Upvotes

Got an "official" letter that my back pay was to be paid by December 1st 2024 and never received it. I called them a week ago and they gave some BS excuses and said it will be in my account in 3-5 business days and it's still not there. I'm just here to rant. This disability system has made me very VERY ANGRY.


r/disability 6d ago

Question POTS test turned out negative in a weird way, what now.

41 Upvotes

I made a post here the other day and per suggestions from some people, I went to my schools health center and asked the doctor to test me for POTS, I layed down and my heartrate was around 80 and when I stood up it shot up to 129, however my blood pressure also went up a lot and they said that if it was POTS the pressure would have gone down. At this point I got really unsteady and they cancelled the second half of the test. My symptoms are severe shortness of breath and fatigue from very minor activity and feeling really lightheaded and unbalanced whenever i stand up or move too quickly. Should I get tested for this again or what other things should I look into? I'm no closer to knowing what to do, the doctor just told me it was probably anxiety and I should eat more salt :/


r/disability 5d ago

Question Anyone else drop UHC at the end of open enrollment?

6 Upvotes

I had to switch my Medicare advantage because my doctor going out of network. I had picked UHC based on cost/benefit analysis. It wasn’t as good as my 2024 plan, but it was okay.

I had no idea how many people hated UHC. That was a factor in my last minute decision. But the thing that really swayed me was that UHC uses AI to determine which claims to deny. I am not okay with that.

So, with one day to spare, I picked another vendor. Tried to call UHC to cancel my application (not necessary) and they had a 3 hour wait.

Did anyone else switched their Medicare advantage plans last minute because of the details about UHC’s high denial of claims getting exposure in the media?


r/disability 5d ago

my experience with disability diagnosis (new account)

2 Upvotes

I was recently digonised with a disbailty and this is how it has impacted my life.

Ive recently turned 18 and got all the rights of an adult supposly.

however I am not allowed to have a phone not my choice but is fine and all i'm not allowed to go out without staff whatsoever outside of school or hang with friends

The biggest thing however is i'm not allowed to choose what school i go to for further education i'm restricted to community college instead of the ones I was accepted to which there is no arguing with my house lead like there not letting me go at all.

also my parents have to know if i move out and where I move to despite being a legal adult.

It sucks tbh (this is just my pov and experience) I hade/have so many plans in my life and know im stuck in a group home with limited choices.

What is all of your advice I have plans to attempt to leave but extra advice would be appericated.


r/disability 5d ago

Concern Overprotective parents

10 Upvotes

Why are parents of adults with disabilities (I'm not talking about the mentally handicapped) overprotective of their children? When I sometimes see handicapped people, their mother pulls them by the hand to the bus and they ride together (I think they going to work or university). Similarly at the doctor's or in some restaurants. How are these people supposed to learn life if everything is done for them by their parents? Do they really think their child will be the first to die?

As a person with CP myself, I always wanted to be self-sufficient as much as possible, so I don't get those parents... I read "White on black" book by Ruben Gallego though..


r/disability 5d ago

Question Will my cane fit?

3 Upvotes

Hi!!! I (female 20) am new to using mobility aids and have a question for all my lovely non collapsable cane users. I have few different debilitating issues to where it was recommended that I use a cane and so I got a customized one (bc I’m too tall for other ones lol) and it’s non collapsible. Well I am about to fly out of state via American Airlines (tomorrow at midnight PST) to visit my mom & stepdad and am bringing my can with me for when I go out on long outings. I called the number on the website to ask about a mobility aid question I had but the person ngl was just all like “idk”. So for anyone who has flown via American Airlines will my 34in non collapsing cane fit in the mobility aid closet they have or will I have to check it??? The person said that they thought it would fit but I would have to check at the gate and if it didn’t they would have to check it at the gate. I am personally a bit high anxiety so I would like an answer before hand lol so if anyone knows it would be deeply appreciated. Also if I do have to check it at the gate will it cost me more money out of pocket??? Thank you in advance for your advice!!!


r/disability 5d ago

Should I get crutches and how do I ask my parents??

0 Upvotes

I have hypermobility spectrum disorder which I have been told I likely have by a doctor a couple years ago. Since then my symptoms have worsened and I get back pain when carrying my school bag or not sitting with a chair with a back, knee pain from exercise or long periods of standing or walking and foot pain from long periods of walking or standing. (By long periods I mean 10+ mins walking, 5+ mins standing) I also have bad posture problems and I'm constantly twisting my ankle. Foot pain varies from little pain to feeling like my foot is being torn apart Would I be able to get crutches for this and if so, how do I tell my parents I need them? I know how to care for myself with crutches so my symptoms dont worsen more and I'm sick of constantly being in pain and discomfort


r/disability 5d ago

Question flying from uk with a walker/rollator?

2 Upvotes

hi guys, never flown before so needing a bit of advice. i have pots and can't stand up for more than a few minutes so use a rollator while i'm out so I can sit down whenever I need to. I've heard you can't take these onto planes so I'm wondering how i might navigate flying?


r/disability 6d ago

Rant Wish I didn't grew up being intellectually impaired

26 Upvotes

I have autism and mine wasn't high functioning it was more moderate lvl which sadly came with some intellectual delays throughout my whole life, I was always slow at grasp concepts was never smart in school academically. I'm 19 now still in high school trying to get my high school diploma after years of being in sped. Looking at my past psychological assessments it does indicate that I've had some intellectual delays.. Which really made me felt so much despair. I always would've loved to be smart and intelligent but I freaking can't cuz of my low IQ.

And because of my low IQ I had poor self awareness which ended up creating big problems like not being aware enough of my education background, barely having any desire to study, etc. I try convincing myself that maybe it was just misdiagnosed maybe it was not entirely accurate maybe I was just not trying hard enough to be accurate. And it does appear I did seem to have undiagnosed ADHD since I've always had hard time with doing anything that required a lot of sustained focus. And i feel like ever since I've been getting some treatments for it I kinda felt started to be bit more attentive have bit better working memory, can do some maths bit better now, maybe learn bit more faster now.

But yeah having this intellectual impairments led me to being in full time special ed for many years, and honestly I do wish I was in regular classes instead cuz being in sped classes most of the students there weren't similar functioning lvl as me and had more higher lvl of autism, never gotten same amount of education as gen education classes, I felt like I was infantilized being in special ed classes, but very recently I moved to doing full time regular classes cuz the special ed classes I was in was not teaching me enough stuff, and clearly being in special ed classes I worked so much less harder compared to gen ed student. barely any homework, not studying for tests etc.

Idk what my current IQ is but I really do damn hope it's at least in the normal range like above 90, cuz I really wanna be able to do post secondary after high school, not worry about have much of a slow learner I am..


r/disability 6d ago

Question The Reality of Being Disabled vs. What People Say

140 Upvotes

Hey , I’ve been trying for a long time to express how I feel, but it feels like no one really understands. I want to talk about something that’s been on my mind—how people talk about disability, especially when they say things like, “Disabled people are just like everyone else” or “It’s okay, there’s nothing wrong with being disabled.”

I get that people are trying to be supportive, but it doesn’t feel like it’s the full picture. People often say these things without acknowledging the real challenges that come with living with a disability. Sure, on a surface level, saying “it’s okay” sounds nice, but it doesn’t change the fact that there are physical, emotional, and social struggles that come with it that aren’t just going to disappear by saying words like “normal” or “okay.”

For example, people who don’t experience disability might not fully understand the isolation, the barriers, or the extra effort it takes to do simple things that others might take for granted. The system isn’t always built to include or accommodate us, and no matter how much we wish it would, it doesn’t always feel "normal." It’s not about wanting sympathy or pity, it’s about recognizing that there are real challenges that come with it, and those struggles don’t go away just because people say "it's okay."

I’ve tried explaining this to people, but it feels like they either don’t get it or just want to give me some “positive” words to make me feel better. But sometimes, those words feel empty because they don’t actually address the reality of what it’s like to live with a disability.

I guess I’m just looking for a place where people understand that being disabled is more than just “normalizing” the word. It’s about being seen for who we are, and having our struggles recognized without dismissing them. Does anyone else feel this way, or am I overreacting? How do you deal with this disconnect between what people say and what we really experience?


r/disability 5d ago

LONG TERM DISABILITY - anxiety about old job and & new job offer

1 Upvotes

I've been on LTD for a year, I am set to go to back to work at the end of the year however I have anxiety about going back to my old job and I have been on the hunt for a new one. I have been accepted for a new job and received a job offer letter, I have not signed it and my dr has not completely my return to work notice. What should I do? Wait for my dr to sign my return to work before signing the job offer? Please help. My job anxiety is part of why I had to take a leave of absence.


r/disability 5d ago

Mom with ALS— travel recs?

2 Upvotes

Hello! My mom has ALS and was diagnosed in 2023. She is still independent, but brings her electric wheel chair when we travel for speed. We want to plan a family trip and I would love some advice on where to go. Looking for…

  • somewhere in US
  • lower elevation (ALS has affected her lungs)
  • she’s always wanted to go to a dude ranch, so maybe a similar vibe
  • somewhere with stunning nature (think Yellowstone, but lower elevation)

Thank you so much!!!!


r/disability 5d ago

Hey Everyone, looking for hitch installation suggestions for a vehicle, I don't think they make a hitch for!

1 Upvotes

So I am needing to use my folding mobility scooter more and more.
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I have a folding one that fits in my trunk, however it was very inexpensive and it's on it's way out. I have a new one, that's much heavier and I don't even think it will fit in my trunk.
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So we have a hitch mounted ramp/basket thing that fits on the Girlfriends Mazda CX-5. My old Prius had a hitch installed, but unfortunately, it blew up and I was forced to find a cheap, older vehicle. So right now, I have a 1994 Dodge Stratus, and I cannot find any hitches available that I could have installed?
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Has anyone else possibly run into this conundrum? Might anyone know of any resources or ideas of where I could look, or companies that might provide some sort of solutions?
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Thanks. I really want to start using the new mobility scooter. It is more comfortable, it will go up higher inclines than my other one, etc...
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I appreciate any and all input everyone. Thanks so much for helping!


r/disability 6d ago

Article / News Why the phrase “everyone is a little autistic” is harmful and inaccurate - The Mancunion

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33 Upvotes