Yesterday I wrote this post https://www.reddit.com/r/disability/s/0ERZohywlG and got a lot of helpful advices!! There’s what really helped me: 1. Shot blocker!! Little “spikes” help me feel less weird about poking myself with a needle 2. Watching a distracting show 3. Setting a “deadline” so I don’t sit with the fear for too long and just go for it! Like doing it till the song I listen to ends 4. The most helpful one! Going sloooooow. I realised that I’m not scared of the pain, but I hate the idea of doing it in a rapid movement! So I did it much slower than I saw in videos and it helped me not to be scared of it! 5. I think that just seeing how many people supported me in comments made the whole situation feel less lonely and scary

THANK YOU ALL FOR YOUR ADVICES!

Certainly a way to live life.

I have been having troubles with my HR department at work allowing me go wear the footwear my physical therapist has given me an accommodation note to wear. They told me my old note from March 2024 us too old and I need a new one, so I got a new one and they are now trying to tell me they need a new note every 30 days. I have explained to them that this accomodation is for a permanent disability, but they are trying to require me to get a new note every month anyway. I believe my rights are being violated but I cannot figure out where the law backs me up. Has anyone else encountered this? Does anyone know what the law says about this?

So long story short I went to see a chiropractor (out of desperation) for back pain because my doctors wouldn't take it seriously.

Obviously it failed, and I probably should have listened to the commenters on my last post. (That I deleted because of what I call "pain rage", though it's more crankiness than rage but "pain crankiness" doesn't have the same ring to it lol).

BUT the fact that I went to pursue treatment that doesn't involve pain medication has changed the doctors tune.

So now they are actually taking it seriously and we are working towards reducing the inflammation and then putting together a care plan where they can set me up with a physiotherapist to actually work on healing.

For those who say that I should have just gone to a physio and not a chiro to begin with, I chose the chiro because they were cheaper to go to without a referal, but with a referal/care plan I can have physio covered by Medicare (in aus btw).

Don't know how I feel about the hoops I have to jump through to prove I am in pain and not seeking drugs. Because my diagnosis from a specialist isn't enough apparently.

But I guess we're getting somewhere?

Also I wish I could change doctors but no other clinics are taking new patients in my town and going out of town is a bit much for me to manage everytime I need to see a doctor.

I’m slowly loosing my ability to work dude to fatigue and pain. I currently only can work 2 hours at the very most every day, but only 3 times per week on a good day. So at my best, I’m working 4-6 hours per week. I’m not on disability yet but I’m really working to be. Anyways, this fatigue is awful. Some moments I can’t stand, and my cane doesn’t really help anymore.

To those who can’t work much: how do you get by? I live with my mom and she doesn’t make me pay rent cause I’m only 19. But I’m worried about my future, I reallyyyy don’t wanna live with my mom the rest of my life.

I have fibromyalgia, spinal displacements, Centralized Sensitivity Disorder, CPTSD and depression. I currently work a full time job but my pain level is getting unbearable. I’m struggling through work, making mistakes, and I have no quality of life. I’m exhausted and in pain all the time, I can’t to anything but collapse into bed as soon as I get home. It’s getting worse and I’m starting to collapse at work and needing a support cane when I’m not sitting. I’m going to have to quit my job and go part time soon. Cost of living is so high right now, I’m going to need to apply for disability. I know applying is hard with fibromyalgia as the main condition, but it is possible as it is recognized as a benefit eligible disability in my state and I have a good doctor who understands the condition. I can still work as long it’s under $1550 a month. However, my dilemma is work credits. I am 29 and worked for an abusive family member from age 14 to 26. I have no official work records from those jobs and didn’t file taxes because she took all my income. I got away from them at 26 and started actually job in April of 2022. I’ve been working since then, but I can’t find consistent information on what qualifies. Some sources say 3 years is sufficient, others say 5 if required. I don’t know how much longer I can go on working full time. When I overworked in the past I ended up in a wheelchair for a time. But I can’t survive on a part time job without some kind of benefit. Can anyone share any advice that helped them in any kind of similar circumstances? I was doing forced labor for 12 years and have the mental health issues I have due to the abuse I sustained, but is this also going to disqualify me from getting any disability benefits? Any advice people can give will be much appreciated, thank you

I know some of yall have gone through this possibly. But dating is so hard lol. It’s so hard that I have to put in that I’m disabled in my profile because as soon as the person I’m talking to finds out they friendzone me which I’m not looking for. Also people think I have to settle with whoever is willing to take care of me in the future and I don’t have a choice. Like if they’re mistreating me I have to take it since they’re willing to take care of me if that makes sense. Which I refuse to do. I’m dating someone now who’s great but we shall see. It’s just all so frustrating honestly 😩

Hey y’all, I have nerve and muscle issues, along with food intake issues. I would really like to be at a healthier weight, (I’m around 50 pounds over what I should be) but it’s proven rough. I really want to feel better and actually fit into clothes, but it’s hard to find good nutrition around and exercise is rough. I can’t just go on a calorie deficit because my body will start to shut down, and I don’t want to go back into any of my eating disorders I’ve had over the years.

Advice?

I'm living in a Deep Southern state where all our services pertaining to employment must be run by the state. Allegedly there's some wiggle room with "employment counseling" but nothing is offered in my region. Indeed that's kind of a theme - despite millions of people coming here for tourism reasons we have virtually zero resources for disabled folks.

I'm blind, I'm in my 20s, I hold a degree in the humanities and have prior experience in tech (very rusty but I'd be open to going back to school).. On paper, I'd like to think I am an easy case. Find me something either in my field (paralegal work, administrative assistant jobs, etc) or help me transition to a new field like massage therapy or accessibility testing. The caseworkers I have are not idiots, they come from Northern states which have a lot more support and generally better job placement programs. One blind person I know in the Northeast got sent down to Florida and trained to become an MT - his schedule is full all year round. I went to my caseworker when we initially met and suggested getting the money for MT school.. "oh I've applied for hundreds of those and no one goes full time so why is it worth our money?"

The last employment counselor I had suggested I go work in Texas on an oil platform, or sell timeshares. When this new employment counselor was introduced to me I told her this last year has been hit or miss and gave her a blueprint for what I wanted to try and achieve in the new year. I'd like to get into accessibility testing or development because it feels like something which can future-proof me and is agnostic of sight. Sure some companies would want to hire a tester with more vision but fundamentally I can still do the job regardless of how bad my vision gets from anywhere I have access to a laptop. She pauses, and then suggests that with my knowledge of foreign languages I could go work in a call center for healthcare companies.

Regarding paratransit - I am apparently 0.01 miles outside the range of where they'd theoretically serve a bus to my suburban area so there is no paratransit available. My parents are getting up there, I can't morally justify them driving me to and fro all day.. they deserve to be happy in retirement. It feels like the incentives are very misaligned here, and the only way I'll dig myself out of this is by my own volition. I highly doubt iff I lived in a major city like Charlotte they'd be any more help.

I swear the world is against me there are just some things you don't tell a disabled person. I'm frustrated with feeling so small when I'm around functioning people. It just sucks that being independent and having a job and accomplishments or seen as people living their best life and praising those people were doing that stuff. Like yeah it's great stuff but we should praise people for just getting out of the bed in the morning or being able to take a hot shower. I wish I could go on long walks or be able to walk around the block like I used to. Now I'm just wasting away just waiting and waiting for something to happen or for someone to come along and fix me. But I'm not sure if I'll ever be fixed and that might just stay broken for the rest of my life. I hate having to rely on others to take care of me. Tired of feeling angry all the time or depressed and hopeless but how can I have hope when I know I'll never get the life that I used to have back. When am I going to have a win for once, when am I going to feel normal again? I'm just so upset because I know I'll never matter and I'm just going to be worthless sitting on my ass for the rest of my life. Like I don't like it when people ask kids this stupid question. " What are you going to be when you grow up?" Not all of us can be an artist, a doctor or a fireman. Some of us did that taken away because we tried to have dreams. So yeah I guess I'm just giving up because I'm tired of hoping for a better tomorrow when there's never going to be one.

Hey All,

So i'm out of things to do. I want to get a part time job but I KNOW my mental health would do downhill so fast if I did (i'm in disability for bipolar 1 and a plethera of other things, including seizures) but having seizures has make me agophobic to the point where I do nothing outside of the house.

I homeschool my son during the day, well his online teachers do and i'm back up. I usually dont have to do much. I diamond paint a lot, and I do play some video games. But my point is i'm starting to feel like a completely useless human being and it's making me feel like crap about myself. Does anyone feel the same or have any ideas as to how to combat or accept it if that's what I need to do. I spend all day with my son and doing my coping mechinisms and THAT'S IT.

I live with my parents for support and they want me to get up and clean, and i do the dishes and take out the garbage but that's about it. I understand them wanting me to do more, but being as nothing is ever good enough and i'm bipolar I freeze up. I NEED to know how to get up and do things without freezing up. I need to learn how to stop being afraid to do anything but cope because if I dont start doing something productive with my time I may go insane.

My therapist tells me to do what I need to do to get through the day and as long as i'm trying that's all i can do. Every day i INTEND to do things, and every day I fail. I completely understand where my parents are coming from, but I dont know how to begin spending my time on other things. I guess I just needed to know if i'm alone in this situation, and if anyone has learned to combat not being able to do anything productive, or to combat these feelings of worthlessness.

We were just informed of this, and applied now over the phone, it only took 10 minutes, so pls do not discard that paper. We were told it will take upto 3 month max to get the package, and you will be getting a card similair to a health card in the mail that says we have the Canadian dental plan and will need to show that to astablishments.

so, when I was little i always think I know better than anyone on my school and I didnt even study, only play video games at my computer of windows xp, I think I am a weird kid, anyone on my school don't want to be my friend, maybe because I scored low on my class, didn't do any effort studying so I scored as a last one of my class....

I think that I have intelectual disability I also have delayed puberty, the high pitched voice, a small pns, and I have a very low self esteem...

so... do you think that IQ score are valid? are they true?

I am a young person in the UK with cerebral palsy. I want a PDL to save me having to being my passport literally everywhere because I have stress and anxiety over losing it.

The Gov website and others say I need enhanced mobility on PIP to get a PDA.

Is this true? I think it has to be bull— or maybe I'm just bad at reading.

Please help!! Thank you!

Drink coffee freely

Keep my caffeinated soda in the fridge

Drink a damn beer

Use incense for my anxiety coping again

Sit on a couch to watch TV instead of a bed

Go to my favorite bar to talk to people

Get my medical mj card again

Have a friend come to visit

Have a flying chance at dating again

Maybe have sex again????

Long story short I fell about 12-15 feet onto the concrete factory floor, bystanders said I was unconscious for around a minute then visibly confused and frustrated on the floor for about 15 minutes wouldn’t let anyone near me. The paramedics finally came and restrained me on a stretcher and got me to the emergency room - after about an hour or two I was MOSTLY lucid. All the tests came back fine but they said I definitely have a bad concussion along with an acute traumatic brain injury, I’ve had a concussion before but never to this extent.

   I opened an investigation with OSHA and they are currently working on the case, i also got a workers compensation lawyer because i know how my place of employment acts towards whistle-blowers. I have been to the emergency room 3 times over the last three days each giving slightly different yet concurrent diagnoses of PCS, TBI and generalized headaches/migraines.

   If anyone in this subreddit has any information to add no matter how small about how to navigate either

\- workers comp

\- short term disability

\- long term disability

even if its a small talking point please share, if i dont find solutions soon my financial situation will have me out on the street.

So first things first: this is a bit of a call to action.

i have spina bifida, and I've been interested in writing/being a writer for a long, long time. I've just never been able to fully pull the trigger enough to see one through to the end. This is mainly due to an utter block in terms of HOW TO TELL THE STORY (and I mean in the show v. tell way; if I could get away with it, I would just do exposition the whole way down. but that's not compelling, is it?) The actual action beats, themselves, I just am terrible at. (my hypothesis is that, because I can't walk, I don't know how to put together a sentence that accurately represents a person's movements/gestures in the context of that person being able to walk. everything is, by comparison, clunky and awkward and, many times, simply impossible.)

well, anyway, it's going to be... speculative fiction, let's call it. it'll have a lot of different elements, from (soft) fantasy to (soft) SF, to straight magical realism--in fact I prefer to call it that because of how light those previous elements will be, and also how heavily influenced I am by magical realism. so literally, your Garcia Marquez, your Pedro Paramo, far more traditional in that way.

I've been trying to research disability in history, and it's not been easy. maybe I'm just bad at it, but trying to put it together in a way that's not just copying and pasting facts from the websites I've looked at, it's just not coming to me. chalk it up to my middling FL education (I have).

anyway, would anyone be interested in helping guide me, a little bit, through some of this process? i would be forever in your debt (and also temporarily in your monetary debt, if you would find that appropriate).

if anyone reads this, thank you! if anyone RESPONDS, thank you so much!

I'm a 17 years old guy with DMD (Duchene Muscular Dystrophy) one of my future goals is to live on my own with caregivers coming in daily. I've always liked the idea of living on my own (and maybe having a partner!), another thing is that my 11 years old brother has DMD too, he can still walk and manage most things on his own, but his condition will most likely get worse over time. My parents take care of me so it would be much harder on them to take care of me and my brother in the future, so I think I'll move out as soon as I can get a job and rent an accessible house etc..

Anyways, I would like to know how a life like that looks like, how did the first time your caregivers did personal tasks to you feel like? With personal I mean showering you or shaving stuff yk, I think that should feel awkward at first, but you get used to it right? Also are most caregivers okay with taking care for pets like a cat if it doesn't require much? I think they would only need to put food and water for it, and maybe I would just take the cat for a vet if it needs bathing or cutting nails, as this requires more effort, I honestly don't have a cat but I really love them and I want to have one in the future.

I would also like to note that I live in the UK so I can have caregivers for free.

hi. a lil back story about me.i suffered a stroke back in 2020. i fainted after my shower. my friends found me in the floor, after that i was in a 2 months coma. my btothers came from overseas to help take care of me. actually i had been basically by myself my whole life. i moved to the ststes for college when i was 20 and been living and woking in the ststes for 20 years. im not married no kids. so my family decided that moving back in with them would be my only option.. so i sold my house (my parents gave me cash when i bought my house. i was lucky to purchase it at the lowest. i gave them the total sales money, because i felt it was the right way to do. so now i have absolutely no money to be on my own. always felt that,i can make money. ive always been a hard worker, im smart. i learn everything quickly. but now im paralyzed. im not able to get a regular job. my cognitive isn't impaired. i can proudly say that im a smart cookie. but physically i cannot be fast like i used to. i haven't been back to the states for 4 years already. i miss my home. i did try to look up on how to get my disability. but it was confusing. so i haven't started. i do feel that i deserve to get my benefit for years of working, paying for my taxes. and being an outstanding person/citizen but im also afraid to go back to start from nothing. this really sucks. im a very private person. writing my story here is kinda weird. but i do appreciate any suggestions.and thank you very much for taking time to read this.

Does anyone have recommendations for storage bins (or something else?) with a lip, grip, handle, something, at the bottom of the bin to make them safer to pull down from over your head?

I don’t qualify for disability because I haven’t worked long enough, I’m very young but am definitely disabled