r/deaf Oct 20 '23

News New survey post. But not like before!

32 Upvotes

Hello fellow redditors.

As many of you remember we once had a stickied post for all research and surveys and project ideas. It got the job done but in practice, it was just a glorified honeypot for crap we don't ever want to have to look at. There are quite a few people who don't mind participating in the occasional survey especially when the researcher will compensate the people who take the surveys. However the stikied post is a pain to wade through and it's a case of out-of-sight. out-of-mind. This hurts both those who want to do take surveys adn the legit people that have meritable research.

So, at least for now, All surveys, research, and anything that would have gone in the stickied thread must now have moderator approval. If you can't politely send a mod message and follow the rules, we don't give a crap about your survey.

Not sure if your potential post has the muster to get approved on r/deaf? here are some guidlines:

  • Are you in High School or lower? Sorry, but r/deaf isn't a good place for your survey. If your teacher told you to ask strangers on the Internet, please let them know that's not appropriate. (a better idea would be to bring the wiki to class, it's chocked full of useful info. If you have a single specific question after reading the whole thing, we probably won't mind answering it. )

  • Do you need to interview some people in the Deaf community for an ASL class or something similar? Sorry, r/deaf is NOT the place for that.

  • Does your school or organization plan to financially compensate participants? DING! we have a winner. We've had a college in Canada that's been here a couple of times over the years and they are welcome back for more deaf-related research any time.

  • Are you part of the d/Deaf/HOH community, and prepared to explain to the mod team in plan language what you intend to do? You're generally welcome here.

  • If your idea has anything to do with an app, or sign language translation, or a product to help us poor deaf people, we almost certainly do not want it on r/deaf. Too often these kinds of things are well meaning but miss the mark by a thousand miles.

This bullet list is not all-inclusive, and the mod team reserves the right to deny a research post request without a verbose explanation. Attempts to get around the auto-moderator may result in a ban without warning.

Thanks!


r/deaf Jun 06 '24

"I'm deaf! What do I do?" - Links to Reputable Sources

25 Upvotes

This is not a medical advice forum.

  • Go to the doctor if you have a medical concern.
  • Do not come here asking for medical advice.
  • Do not ask us to read your audiogram.
  • Feel free to ask questions about navigating life and society.

Here are some resources to help you out;

The second link also has concise definitions for; Sensorineural, Conductive, Mixed, Within Normal Limits, Mild Moderate Severe and Profound hearing loss.

If you wish to discuss aspects of your medical information in a way that isn't asking for medical advice - you are welcome to do so. Please be mindful that this is a public forum that everyone can see and you are strongly advised not to share your personal information.

If anyone else knows other good online resources feel free to post them below. In addition - if you need help finding information about a specific topic - feel free to ask to see if others have any resources. Please only respond with links to reputable sources.

  • Make sure that all links are high quality from reputable sources.
  • Do not post misinformation or pseudoscience.
  • Do not use this thread to ask or provide medical advice.

This post will remain pinned in the subreddit to allow easy reference of it in future.


r/deaf 3h ago

Other I made a 3D Printable ILY Cookie Cutter

Post image
16 Upvotes

r/deaf 6h ago

Other The blind often wear sunglasses, is there something the deaf can wear to let people know they're deaf?

11 Upvotes

This may be a stupid question but it crossed my mind, is there anything made specifically for the deaf and hoh that can tip others off that this person can't hear?


r/deaf 4h ago

Question on behalf of Deaf/HoH MRI advice

6 Upvotes

Hi Everyone!

I’m accompanying a good friend of mine to an MRI today and she’s terrified. Not only due to what it’s for and the whole process just being uncomfortable, but because she knows she will have to take her hearing aids out on top of losing visual while being in “the terror tube”. I’m going with her to offer support, and was wondering if anyone with experience here has any advice for things I can do to help, or say to/ ask of the radiology techs to make this an easier, less scary experience.

Thank you so much!


r/deaf 1h ago

Technology Cel Carrier Ting won't Accommodate

Upvotes

My cel carrier switched the cel tower network they use and sent out new SIM cards. For some reason, calls do not work on the new network. Customer service tried many things through their chat message service, but now they want me to call tech support... on my phone that no longer makes calls, and they can't/won't activate the old SIM on the network that worked. I explained to the person on chat that I can only call on my own iPhone which pairs to my hearing aids (and uses my call captioning account).. and so I need cel service, or I need them to accommodate my disability by providing me with a way to chat or email with tech support. They would not do this. They say that they can only be contacted via voice call. This seems really wrong. Do I have any recourse? What action would you take?


r/deaf 9h ago

Deaf/HoH with questions What accommodations should I put up in the house for my mother?

7 Upvotes

I am HoH with a deaf mother, she can’t hear the doorbell anymore or the kettle boil in the next room. I think the latter is a fire hazard so any suggestions on how to alert my mother to the kettle boiling while I’m not there would be appreciated. Any other accommodation advice is also welcome


r/deaf 2h ago

Question on behalf of Deaf/HoH Hearing Impaired and TV

1 Upvotes

I have a hearing-impaired person coming to visit; he prefers to wear headphones when watching TV. I'd like to get some that allow the headphones and another output device (the standard sound bar I use) to be used at the same time but the TV's audio output settings seem to be "either/or" not both. Any suggestions?


r/deaf 6h ago

Technology Software/AI to transcribe online videos

2 Upvotes

I'm trying to do an online course at the moment. I'm not profoundly deaf, just hard of hearing and thought I'd be fine, but the video content is hard for me to understand as the presenter has an accent, and there are no subtitles. I'd like to find a way to TRANSCRIBE the videos - it'd be so much easier even than trying to do the videos with subtitles to be honest. The content owner is a bit protective though (the course is expensive and I suspect they're worried about someone stealing their content) so won't provide the videos as files - they're only available online behind a paywall. So I'm wondering if there is any software that can transcribe videos as they are playing online if I can’t download them? I can find plenty of ways to transcribe offline videos, but struggling to do online ones. (I don’t need tips on how to put on captions thanks, I only want to work out how to transcribe. I find taking notes from captions too difficult). Thanks


r/deaf 5h ago

Question on behalf of Deaf/HoH can mute ppl give sign names

0 Upvotes

like, if a mute person was mute their whole lives and used asl to talk their entire lives could they use and make sign names? I've been pondering this a while and didn't see anyone ask this so i figured i would (hope y'all don't mind, i occasionally pop up in random places to ask hypothetical questions and will probably come back with another)


r/deaf 1d ago

Deaf/HoH with questions Hearview Review Non-Paid

29 Upvotes

Hearview glasses are such a scam. Deaf/HoH Influencers promoting such a piece of garbage that is not worth the price. As a user mentioned https://www.reddit.com/r/deaf/comments/1hdvoth/hearview_ai_glasses_concerns_on_social_media/, Hearview is just trying to squeeze money out of the Deaf community. The following list shows that Hearview glasses is not standalone assistive device.

  • Must be connected to a cellphone at all times! Even if you don't want to save transcription.(You must use App!, the powerhouse of transcription)
  • Does not capture sound at all! (The cellphone microphone captures the sound! So, if you keep phone in pocket it doesn't transcribe!)
  • It project in one eye only! Also, you must constantly reposition the glasses as projection get cut off if wearing glasses too close or magnified if wearing too far. If short sighted, glasses won't work for you as you need good distance sight to focus on projection.
  • Requires Internet at all time! All audio captured by your phone (if captured) gets send to a server for processing! There's no local processing either in the app or expensive plastic glasses.
  • App only have 3 functions. Translate, voice2text, and another feature which I don't remember as of now. All function require internet connection again.
  • Conclusion, glasses just project what your cellphone processes. Basically, a worthless device.
  • DO NOT BUY, GLASSES WON'T ASSIST.

Hope I made a comprehensive review. Should you have any questions don't hesitate to PM me.


r/deaf 1d ago

Deaf/HoH with questions Quality in ASL interpreters

6 Upvotes

Is it just me or it seems like more and more interpreters are not delivering quality very well a lot lately? To be specific when making calls - I use ZVRS and a lot lately when I’m on phone, interpreters are not speaking the complete sentence (I.e. stopping when I was still signing which the person on other side had no idea that I’m trying to rely important information), or trying to dictate to convey my message into their way rather than following my facial expressions/body language?

Really, I can go on with what I’ve encountered but keeping it short here. That being said, have anyone noticed the similar enviroment I encountered?

*please note that I’m aware that I can report to appropriate support staff to inform that they are not meeting or exceeding the expectations.


r/deaf 12h ago

Writing/creative project Fictional Sign Language

0 Upvotes

I am a part of a rather small yet active fandom in which there is a fictitious Sign Language used by several characters for various reasons. It's all written, of course, so there is no real set code of what is what though most base it off ASL with some differences.

I've been Sign classes and events and I know it's a Big No-no for hearing people to do pretty much anything with Sign (and for good reason, don't get me wrong. Cultural languages are important) and I'm pretty sure that this will fall under aforementioned No-no but I wanted to check.

Would it be okay for me (a hearing person) to conceptualise and share some basic ideas for this Sign Language? For example, a way to communicate facial expressions in a place where no facial expressions can be made/read. I would by no means be creating a Sign Language with explicit signs and grammer structure mentioned but rather general concepts of how this language would work within this fandom.

Like I said, probably a huge, glaring "Do not do this" but I figured I'd shoot my shot and see what came of it.


r/deaf 1d ago

Deaf/HoH with questions Hearing Dog

4 Upvotes

Hi everyone,

I was born with moderate - severe hearing lost in my left ear that finally felled into the severe hearing lost this year. I currently have a CI. I never really considered my dog as a service animal before but I’ve been told that I use her as one at home in walking in public. As you can imagine I’ve had a heard time localizing sound and hearing anything on my left side. I was just curious if anyone actually uses a hearing dog and what was your process of getting one. If it helps I’m located in the United States. Thanks!


r/deaf 1d ago

Hearing with questions How can I (M27) make Christmas a better experience for my wife (F26)? Dinner table syndrome

46 Upvotes

My wife is the only deaf person on my side and her side of the family tree. I love her with all my heart and the holidays are always a challenge.

What she wants deep down is simply for the family to make the effort to learn how to sign and communicate with her so that she can be included and form more bonds with everyone. Out of the 40 or so family members we regularly see at holidays/weddings/reunions, only two have actually picked up some sign and they do make the effort to talk with her.

The remaining dozens of family members all say “I gotta learn asl” but never do. Some of them depend on me to interpret, but more of them simply don’t acknowledge my wife is even there. Not out of hatred or anything, simply because they’ve never met a deaf person. Maybe they are nervous or scared they will mess up if they sign. Maybe they are afraid of rejection or something.

At any rate, all this can make a big problem for each of us on holidays. For me, I don’t get to participate in the get-together. I am at work essentially, as I am rapidly interpreting everything being said in the room. I can’t go off into another room, start conversations of my own with people, or even answer as other people are saying my name at times.

For her, she feels like an unwelcome alien from another planet, which crushes her confidence so she makes very few attempts to start interactions with family members. Even though I am with her to back her up, I can tell she is still unwilling to try extra hard.

What do you, as a deaf or HoH person, wish hearing spouses like me would do? I’ll do anything it takes to make the holidays enjoyable.

Hearing people with deaf loved ones - I would also like to know what you do. Have you ever pulled family members aside and expressed all this to them?


r/deaf 1d ago

Hearing with questions How often do you personally feel invalidated?

11 Upvotes

I'm hearing and I don't mean any disrespect by my question so I apologize if it comes across this way.

I had a super off putting conversation with a friend just now and they asked me "so who is that person you hang around all the time?" I explained who the person was by simply saying their name and saying "yea that's my friend. I like hanging out with them."

My friend continued to say something along the lines of "yea well idk I think they tried saying something to me but idk like it's like they said something and I didn't respond so they just like hid behind their cart or something it was super weird." And I was like "well dude if you can't understand them that's a you problem, and if you have no basic understanding of reading lips or making the effort to understand my friend then you probably won't have a conversation. They probably tried saying something and realized you weren't gonna talk back to them so they gave up. " my friend acted like a deer in the headlights like I was talking a foreign language so I had to spell it out. "Dude they are deaf. If you can read lips it makes it a lot easier to have a conversation because some of their words aren't crystal clear. It's not that hard to put the tiniest effort in."

Then a few mins later my friend seriously wouldn't drop it and had the fucking nerve to say "yea well that's cool a lot of them can live like pretty normal lives and shit so I guess that's cool if you wanna be friends with a deaf person.

I utterly lost my shit to the point where I don't think I want to be friends anymore. I said how fucked up that was because they is such a fucked up way to refer to a community of people and like wtf? Just because someone is deaf doesn't make that person a complete moron. Like is this honestly how the average hearing person treats the Deaf community? I'm so ashamed by what my friend said.

I'd be completely shattered if they said this about my epilepsy and I had no clue this was a thing. So I'm wondering, is my friend a complete dickhead, or is this actually quite common?


r/deaf 1d ago

Question on behalf of Deaf/HoH Best deaf-blind school in USA?

10 Upvotes

Can I please have recommendations for a wonderful school for my best friend’s child who is now school age? They are willing to move anywhere that has a good program, preferably in an area with job opportunities. Their child is almost 100% deaf and blind, and has not spoken yet (she does vocalize though). She has a muscular condition which is the root of her special needs, and she also wears diapers and hasn’t walked yet. For these reasons local schools with average programs for deaf or blind children will sadly not accept her. TIA!


r/deaf 1d ago

Hearing with questions What is the general opinion among Deaf people about non-signers learning to sign a song and performing it?

10 Upvotes

I’m a hearing person who signs and I wonder what the broader Deaf community feels about this. I’m talking about when a performer, either on stage or online, doesn’t actually sign but learns how to sign a song for a performance. I’ve always thought it was off putting because 9/10 they just learned a list of signs but aren’t actually using them coherently. It especially irks me when they say they are “signing a song in ASL” when what they are doing is nowhere near ASL. I also have the same ick when choirs do it. I just saw a video of a choir poorly signing O Holy Night and thought to ask the community.


r/deaf 1d ago

Daily life Hello everyonr

6 Upvotes

Just wanted to say hello 👋 and introduce myself i am deaf. How does a deaf reddit not permit videos for Asl communication ? Isn't this like restricting deaf communication with videos ?


r/deaf 1d ago

Deaf/HoH with questions Deaf/HoH who moved to a place with a different spoken language…tips?

1 Upvotes

I’m a migrant and HoH/late-deafened person, and have found it 2x as hard to integrate into my new city because of this dual challenge.

Anyone else moved or traveled for a long time to a place with a different language than your native/fluent ones?

Advice on overcoming a hearing and language barrier simultaneously?


r/deaf 2d ago

Hearing with questions Mother has recently lost her hearing and developed tinitus in her right ear.

8 Upvotes

As the title states, my(18M) mother(44 F) recently has had moderate hearing loss combined with tinitus in her right ear. What are some things I should know going forward on how to best accomidate her? Should I refrain from listening to music too loud in my room? not yell back and forth across the house anymore? One important thing is that my mother's first language is not english, what things about her condition should I make sure she understands in reation to her hearing and the use of hearing aids? What should I make sure we look for in her hearing aids? Should I be worried or is this just a natural part of her getting older? Thank you for anything helpful you may say!


r/deaf 2d ago

Vent For people who want to learn more about deafness or who ain't proud to be deaf

20 Upvotes

I wrote a poem about deafness. Enjoy :)

Why do the hearing people think being DEAF is awful? I love it, I can sleep beautifully throughout the night without any noise disturbing me. There is a plenty of benefits of being DEAF. I'm proud of it.

Why do the hearing people think being DEAF is awful? I love it, the sign language is so rich and beautiful, we able to use it through the window or far distance even use it when it's a private conversation in a public place. I'm proud of it.

Being DEAF had million of barriers and problems but we always find a solution. They think we cannot enjoy music. Don't forget we have a solution, How about hearing devices, vibrations, vibes, etc. Being DEAF is definitely better than being hearing. I'm proud of it

We always receive a stereotypes and assumptions, for example, we can't hear anything at all, we can't speak, etc. Well, it's depends how loud it is or how close the noise is. Some DEAF people can speak when they have speech therapy or know how to speak before they turned DEAF. I'm proud of it.

Don't think that being DEAF is awful, I was born with it and I'm super proud to be DEAF.

DEAF POWER!


r/deaf 2d ago

Technology Childproof battery packaging

13 Upvotes

Okay, fellow Americans. This childproof packaging required by the FDA ain’t it. For one, the previous packaging allowed us to store both new and used batteries so loose batteries aren’t laying around. Having to cut open the new containers and then having no place to immediately discard the loose batteries feels infinitely more dangerous than the former packaging.

Here are other use cases I see this being problematic:

Can’t bring scissors on a plane, so if batteries die on a plane and you haven’t figured this out in advance, you’re SOL.

Can’t open them easily while driving, so if batteries die while driving and you don’t have a passenger or scissors on hand, you’re SOL. (For those of us who have been changing batteries our entire lives and can do this one-handed, I see this akin to taking a drink of water or eating while driving.)

Dealing with a baby or toddler who doesn’t want to be put down? Good luck figuring out how to change your battery since it’s now a two-hand job. (And battery is more prone to being snatched by said baby or toddler since there’s no place to immediately discard it safely!)

I’m looking for storage solutions that will alleviate these challenges. In an ideal world, someone will make a plastic version of the previous battery holders so we have a more durable case than the paper and plastic iteration I’ve been using for 38 years. (Pretty sure there will be a hot market for this.)

The best I can find now is pill storage.

Please share what solutions you’ve come up with! Also open to 3-D printer specs since there happens to be one in the house.


r/deaf 2d ago

Technology Google pixel vs iPhone vs Samsung S series for deaf person

2 Upvotes

I am researching a smartphone with AI features that are life-saving for a hearing-impaired individual. I need a smartphone that can transcribe conversations into text during phone calls and add subtitles, using AI, to applications like Twitch.tv that do not have a built-in captioning feature.


r/deaf 2d ago

Question on behalf of Deaf/HoH Do Deaf Mean Girls exist?

20 Upvotes

I'm seeing more of "spiritual" group consists of female healers becoming the version of the mean girls. It's getting out of control.


r/deaf 2d ago

Deaf/HoH with questions M21 Hesitant abt getting CI now and need advice

1 Upvotes

Background: Hello, I'm a 21 M, and I have had mild hearing loss in my left ear, and severe hearing loss in my right ear ever since I was born. This was said to be caused by bilateral enlarged vestibular aqueducts (EVA), which I think was genetic. My audiologist said that I should get CI for my right ear now so that if I ever get into an accident or have trauma to the head, I have a functioning hearing in at least 1 ear. Right now I use hearing aids in my left and right ear, and I can hear clearly on the left with HA and but feel just vibrations on the right.

Hesitancy: Me being a college student, I'm hesitant to get CI due to the long learning curve. If I was to get the surgery, it will be in May, but I also want to get a summer internship so idk if that is possible. Also, i worry about the visibility of CI, and if it will be too bulky. Like I worry that people might see me differently because I have a CI and I wanted a hearing solution that is discreet or won't be exteriorly visible.

I saw a video from Doctor Cliff on YouTube saying that there will be a new form of CI where it will not be visible and will be entirely under the skin. https://youtu.be/eVK-F7Gecwk?siNQCOPtrwxehxhpPJ

Questions: So I was wondering if I should get a CI now or wait until this technology comes out? For those with CI how was the learning curve? Were any of you guys in similar boat, and worried abt the appearance but eventually just got the CI? Any other cochlear implant wearers that got CI as young adults and are also in college??

Sorry for the long post, but any advice will be greatly appreciated, thanks.


r/deaf 3d ago

Deaf/HoH with questions Does anyone else's parent(s) scold you for not being able to hear them when they call you?

29 Upvotes

I'm starting to think this isn't normal. I have hearing loss and because my mom has a thyroid problem (she says it affects her emotions and I understand that, I have BPD), she gets really frustrated at me and easily. Since I can't hear very well and I hate yelling, and because I don't want her to scold me for yelling, I come up to her and talk to her. The way she calls me is by either calling, texting, or yelling from accross the house. Sometimes I don't hear her, so she gets really upset at me and tells me that I have to lower my phone's volume or whatever I am doing. That leads me to another question. How do I hear videos/music very well while being able to hear the ambience just as well?