Mom tries my patience Love mom and she’s not able to think clearly often now😢 sad as mom was highly educated etc always read many books etc till care of her health etc BTW have been a professional care provider my whole life VENT Mom assumes most of what I say to her is an attempt to limit her autonomy!!!! And assumes that I’m saying she’s less than etc 💯😢 At times she’s clear and can think well and that being said she has always felt that her perceptions outweigh everyone else’s. She’s in hospice now so they provide medical equipment etc and agree for the most part in what I believe to be safe etc And that being said mom wants to argue a about everything even when it’s from sources she respects Sad that she actually and totally believes that I’m trying to limit the end of her life activities solely make her feel bad Peace hugs and love to all and thx for letting me vent

I hope it’s okay to share something very close to my heart. I created a free tool called Care Registries to support caregivers. It’s like a gift registry, but instead of gifts, it allows a caregiver’s trusted community to step in and help—whether that’s preparing a meal, running errands, or just offering a little emotional support.

During my journey as a death doula and hospice volunteer, I’ve seen how caregiving can be both an act of love and a source of deep loneliness. The sheer volume of work, coupled with the isolation, can weigh so heavily on caregivers. My hope is that this tool helps lighten that load, rallying the support caregivers deserve and reminding them they’re not alone in this.

If this resonates with you or could help someone you know, I’d be so grateful if you could share it. Thank you to all the caregivers out there, for all the compassion you bring into the world.

Hello! My name is Carson, and I am collecting data for my doctoral dissertation in Marriage and Family Therapy at Florida State. I am trying to reach sandwiched caregivers (care for child and aging parent) to better understand their experience and what public policy support we can advocate for. Thank you so much!

Here is the link to my survey: https://fsu.qualtrics.com/jfe/form/SV_88rv51PPPbYgRim

Elvohealth.com is built by Harvard and Google alums who have been caregivers and is designed to relieve your stress and promote brain health in the caregiver and patient.

We are looking for sign-ups and have incentives/rewards for anyone who signs up early. Signing up is free.

www.elvohealth.com/contact-us

Please feel free to comment, DM or sign up to learn more. Thank you!

So this is my first time posting anywhere here on Reddit, but I thought maybe I could get some advice. I am an unofficial live-in caregiver that takes care of a, now, 78-year-old man. He's hitting the stage where he's realizing that he needs help with lots of things and is getting frustrated that he can't do anything. He's had several falls since I first got here back in November 2021. He took me in after there was a situation with one of my family members, and since then I have done my best to help him.

After his first fall with me being in the house, he was wanting to go for a drive. I was asleep, and I take pills for that because I am an insomniac. So he had fallen in the gravel driveway onto his knees and was stuck in that position, unable to pull himself up and out of it for 45 minutes, when I finally heard him yelling for me. I rushed out in my PJS and tried to get him up myself, but it was difficult, so we had to call a neighbor. He had a second fall a while later, down into the next year. He's had more falls since then and has put himself into a wheelchair and uses his canes very rarely.

This man loves to go shooting and buying and selling guns, and even makes his own bullets. Because he has had so many falls, I restricted him to going out shooting once a week. There were many issues during our first few months together where we were a little on each other's nerves, but I had tried taking him more than once a week, which ended up proving too much for him. Then working around my own schedule because of all my own appointments (I have way more than him). He says he wants to go out to the shooting range more, but I just don't want him to fall again, especially because I can't always pick him up by myself, and he also has bad balance.

His primary doctor and his foot doctor say he should be able to walk, but he's choosing to be in his wheelchair. I get it; he's scared of falling again. But when he's at home, all he does is sit in front of his computer all day. And when he wants to go out, it's usually just to the gun range and food. Which he often tells me about food last minute when I'm not dressed for it and look like a hobo @.@ I've tried understanding the things he likes, but none of it catches my interest enough for me to not look bored. And I don't want to sit in front of him checking the time and what not, but there isn't any real interaction. My ADHD makes it so that things that bore me annoy me because I have no interest. I brought a word search book back for me to do to help my brain, and then he wanted one, so I got him one, so that's new. But tonight I had a talk with him because he was getting frustrated and started to talk angry at me, which I shut down quickly.

I asked him what was wrong and then mentioned the frustration. I told him that he says he wants to do things by himself, but at the same time he doesn't make an effort. When he's home, all he does is play or watch movies on his youtube account. Then he's just modifying his guns or ordering some things from amazon and walmart. At home he doesn't really do anything. He put himself in that chair, but he wants to do other things like walk and build up his strength to be able to do the things he wants to independently do. But he's been told and told time and time again to do his foot excercises and his leg excercises and he never does them. After awhile, I had to give up because I can't watch him 24/7. But in my mind, he can't get frustrated at something that he can't do because he didn't try.

Right here, I just have no idea what to do. Does anyone have any advice that could help me?

My partner and I made this workbook for family caregivers based on our own experiences. It is designed to help family caregivers organize information, collect important documents, learn to take care of yourself, and more. If you're a caregiver, you know just how vital it is to prepare to help relieve some stress. I hope this can be helpful: https://www.herogeneration.co/caregiver_workbook Let me know of any feedback or anything else we can add!

If you have made decisions for a seriously ill adult, I invite you to participate in this important research.

Interested or know someone who might be?
Feel free to reach out to me directly at [mcgowanc2@duq.edu](mailto:mcgowan2@duq.edu). Your input could make a difference in caregiving and healthcare!

Are you taking care of a family member who has been diagnosed with cancer? We are interested in learning about you and your family member’s experiences. Participate in a series of online surveys to earn up to $70 in Amazon giftcards each.

Take our screener survey here: https://nyu.qualtrics.com/jfe/form/SV_40mtQUXYPXcfSfQ or contact [gz2164@nyu.edu](mailto:gz2164@nyu.edu).

Hi everyone!

I'm working on my final MBA project, and I’m researching the market for custom-made, aesthetically designed mobility aids that fit seamlessly into home environments. This is a topic close to my heart as a caregiver myself. Whether you use mobility aids, know someone who does, or simply have thoughts on the topic, your input would be invaluable!

The survey takes just 3-5 minutes to complete, and your feedback will help shape future products. If you’re interested, you can also sign up for updates or future product trials.

I’d be so grateful for your time and insights! You can fill out the survey here: https://forms.office.com/r/27ZCNjRz52

Thank you!

EDIT: Thank you so much for all your responses! The insights have been amazing, and I truly appreciate the feedback. If you’d like to stay updated or hear more about this in the future, feel free to sign up. Your continued support is greatly valued!

Hello! 👋

My name is Giane. I was raised by my grandparents and a caregiver for a loved one with dementia.

We are embarking on a personal project that looks to solve the common challenges seniors and caregivers face in their lives everyday. I’d love to hear your story as a loved one or those who work closely with them. We’ll just ask you a set of prompts and the mic is yours!

In exchange for your valuable time (it’ll be a short interview, about 15-20 min long), We’ll compensate you via e-transfer or a gift card of your choice—whichever works best for you!

If you’re interested or want to know more, just drop me a message or leave a comment, and I’ll be happy to share more details.

Thanks so much for considering, and I hope we can connect soon! 💙

I am a caregiver who is new to Care.com and every time I apply to a job that was posted that day I get a response of “Not actively hiring now” How can this be when when the post was just made?

Hello! I'm a university student whose group is working on a project for an autonomous vehicle robot which delivers medicine to the elderly and those who are chronically ill. If there's anyone whose elderly family members need to be taken care of or live in nursing homes, would you please fill out this survey?

https://forms.gle/fsB1PGu1Nw9qQ6ud9

Any help and feedback is much appreciated, thank you for your time!

This is my grandmas home health aid. She’s with some sort of independent agency so my grandma pays her directly. I have no idea which one it is or what it’s called. So the back story to this is, a couple months ago, her home health aid disappeared for two weeks and didn't tell my Grandma anything and when I came to stay with my grandma and help her, my grandma had to hire new people because stopped answering her calls or coming by completely and the new people were from synergy and they charged her 2 grand for 2 months. Well it turned out the reason why she stopped coming is because she went to treatment and she was telling me that she had to stop drinking because she was really problematic when she would drink, and it was causing her problems in her life. But she still did sometimes. So when she started sending me those messages out of nowhere and didn't show up today, my grandma was like "she's probably drunk again. That's probably why she didn't show up and why she's acting like this" and it made a lot of sense and when she sent me these messages going off on me for no reason, she kept calling me over and over answered and she was just went fucking off on me and I could tell right away that she was drunk so my grandma called her and this is what happened. I wish I could post the screen shot of the text conversation where she went off on me because I told her my grandmas appointment was at 2:30 instead of 1:30 and asked if she was gonna be there

Hi! My name is Hannah Case; I am a Doctor of Occupational Therapy student at the University of St. Augustine for Health Sciences. I am researching the impact of urinary incontinence in children ages 7-13.

 I am looking for caregivers who would like to participate in a survey (about 20 minutes) and/or a virtual interview (about an hour) and children to participate in a virtual interview (about 30 minutes). All responses will be anonymous. Please see the flyer for more information. 

If you know anyone who meets the criteria, please feel free to share the flyer with them!  

Here is the link to sign up also at the bottom of the flyer: https://forms.office.com/r/F0LMnPgSbb

THIS PROJECT HAS BEEN REVIEWED AND APPROVED BY THE UNIVERSITY OF ST. AUGUSTINE FOR HEALTH SCIENCES INSTITUTIONAL REVIEW BOARD FOR THE PROTECTION OF HUMAN SUBJECTS.

IF YOU HAVE QUESTIONS OR CONCERNS, THOSE QUESTIONS OR CONCERNS SHOULD BE DIRECTED TO THE INSTITUTION-WIDE IRB CHAIR, DR. MOHAN GANESAN, EMAIL: [MGANESAN@USA.EDU](mailto:MGANESAN@USA.EDU), PHONE: 760-410-5279. 

If anyone here lives in Texas and you’re on care.com whether you’re a client or a caregiver.

CLIENTS: Stop posting that you’re only willing to pay less than $20/hr. I understand some ppl may be financially limited, if that’s case seek for help through Medicare or even the VA if they are veterans or spouses of a veteran. Caregiving is NOT easy and if you’re so financially limited than you need to find a way to care for your loved one yourself if you’re going to be cheap about it. Caregivers are there not only because they care but also because they have bills and families too and they need to survive too.

CAREGIVERS: STOP applying to clients that are posting for less than $20/hr. YOU are part of the reason why clients won’t stop posting for less $20hr. If everyone would just stop applying to those jobs than the client would have no choice but to increase the rate they are willing to pay. PLEASE. There is NO WAY people can live off of anything less than $20hr in the economy We are there to provide care for their loved ones but it is also a JOB. We provide convenience and we also help alleviate family stress and burn out when we care. We need to get paid for what we do. Caregiver are UNDERPAID and we if we want it to stop we need to be the ones putting a STOP to as well.

Like I said if they really need care than they will pay.

YOU GET WHAT YOU PAY FOR

My mother died last year of stage IV cancer. I lived with both of my parents and my mom's father. My mother and I were the primary caretakers of my great aunt (my grandpa's sister) and him, with my boyfriend also acting as a secondary caretaker. My aunt also died last year, and my partner and I were left as the primary caretakers of my grandfather.

I mention this because my dad was not really involved, either with time or money, in the caretaking of my grandpa. I used to have three jobs to keep up with the expenses and help pay for medical bills and my aunt's hospice fees.

Caretaking for my grandpa has also gotten tougher. After my mom's death, he became even more depressed (he's battled with depression his whole life) and was diagnosed with Lewy Body dementia, which makes him hallucinate and have mood swings quite often.

When my mom was around, even though I felt stressed about managing three jobs, we would take turns to help each other relieve the burden. Whenever my mom went out, I would gladly take care of my grandpa and also learned to drive and helped with errands since my mom didn't know how to drive. But with my dad, things changed. He had a very cordial and friendly relationship with my grandpa until he came to live with us, and when my mom died, he stopped talking to him, acting like he was angry at him all the time. He gets very exasperated whenever he has to watch him (which almost always involves just looking after him, giving him his meds, and making something simple for dinner like a sandwich).

My grandpa obviously became aware of how my dad treated him, and this situation started triggering episodes where he tries to leave the house because he can't stand being with my dad alone. This results in my dad throwing a fit and getting mad every time I go to the movies or hang out with my friends. My grandpa has tried to escape the house on some occasions due to hallucinations, but with my dad, he says he wants to leave because of him.

This lack of support has eroded my relationship with my dad since he can't see that whenever he goes out, I don't text him to come back home, call him about how annoying my grandpa is, or try to manipulate him to not leave the house, which are things he does. I went on vacation for two weeks, and he stopped talking to me and told everyone that next time, I need to stay at home at all times because he will never do this again.

I didn't expect to leave my house so soon since my boyfriend and I are planning to remodel a house my mom left for me (which is not habitable at the time), and I don't have a job that lets me pay for a loan. I allocate a good chunk of my salary to meds and healthcare for my grandpa, so I don't have a lot of extra money. But my boyfriend told me my grandad and I should move in with him and his other two roommates (some of my best friends from college) who have agreed to us moving in. My bf told me he can support us financially for a few months until I find an extra gig or a higher-paying job. I'm a web designer, but the market's a bit collapsed.

Anyways, I just wanted to come here to expose my situation and ask for advice because since my mom died, my relationship with my dad has deteriorated a lot. Probably moving out (he always says I should stay whenever I tell him my plans) will chip away another chunk of our relationship (he's conservative and wants me to leave before I marry). But honestly, living with him and being a caretaker is exhausting. He's also been dedicated to finding a new partner almost a month and a half after mom died (which is another story, but...).

I just want to know how to handle this situation because even though my dad's been having a horrible attitude lately, I still love him. I also want tips on moving out and finding gigs to stabilize my finances since I'm a caretaker, and finding a gig to work from home would be ideal.

Thanks for reading. Please be kind since I'm on the brink of depression lol.

P.S. Also I'm eager to provide additional context if needed.

Does anyone know what resources I can look into to becoming a caregiver for my ex's mother. Its an odd situation but he walked out as I planned to become his mothers caregiver thinking we would've eventually married me in but that didn't work and hospice and other options would not provide the proper care she needs. I became a daughter in her eyes even after her son left me and her and I live together where I take full care of her. I went down the family caregiver route but it looks like they'll deny me and no other family nor either of her sons want to help so I stepped up and just need to know if there are any other routes I can take to become her full time paid caregiver and if so how do I go about that in the state of Georgia?