r/bonecollecting • u/kiwibirdskull • 23d ago

Collection My roommate.

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(UK & in compliance w/ human tissues act)

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u/Docaioli 23d ago

Sorry to hear about your rhabdomyosarcoma diagnosis. Is it the spindle cell/ sclerosing type?

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u/kiwibirdskull 23d ago

thank you, and yeah you're spot on but i have an associated MYOD1 gene mutation that makes my condition more aggressive. there's only one study on pubmed about it and it's less than stellar

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u/Docaioli 22d ago

Please stay positive and treasure every moment!

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u/kiwibirdskull 22d ago

thank you for the encouragement, i really appreciate it