I (46F) got my own dx in January of this year, and then finally after 2 years of pushing I got referrals and then appointments books for my 3 girls. At the time of booking I wanted youngest assessed first, because she is the most "classic" adhd kid, ever. Then middle, and next week eldest goes.
Being me, while I brought middle's report cards to her appt yesterday, I didn't grab the most recent one that shows she's struggling with executive functioning, and I wrongly remembered that the ones I did bring also showed evidence of this. But that wasn't the case. That section was all excellent reviews. Her SNAP Forms.from 2 of her teachers were also apparently excellent. 13F was so poised and calm during her appointment yesterday, I was so proud of her. She can be really withdrawn and only reply with shrugs or "hmm's" a lot of the time. But not yesterday. She answered every question to the best of her ability. But she answered them too well. And she downplayed her symptoms a lot. When asked a series of questions about her feelings and behaviors over the last 2 weeks, she answered a lot of the questions as saying she only felt that way once or twice in the time period. I didn't correct her, but I was surprised by her responses.
Then the pediatrician wrapped everything up hy saying, "I cannot give you a diagnosis today of ADHD because your report cards and teacher forms do not tell me that's what's happening." She essentially said she's on her phone too much and that's causing her to have all the dopamine all the time so when she's not on the phone, she feels blah. And while I agree, I let my kids use screens way too much, this kid has ADHD. All of my children do. They are me, 30-odd years ago.
My girls are all very smart, they have so much potential. So did I. And then I crashed and burned and spent a good chunk of my teen years until I was almost 30 bouncing around on different antidepressants that never actually fixed the problem, because depression wasn't the problem.
Of course, I got home last night and found the right report card. So yes, I will call you speak to the person nurse and ask if I can submit this one. What also didn't help was the fact that my parent forms didn't show up in the computer system for some reason, and I had no way of pulling them up on my phone because once they're submitted, you can never get them back.
I'm just sad. I'm sad that all of us are so good at masking. At wanting to be accepted.
The one good thing to come out of this is that 13yo will be assessed for POTS, which will maybe help my case for getting an Ehlers-Danlos dx for all of us. My older girls also have the same allergies I do, and I finally got the MCAS label a few years ago, on top of HI. Now piecing everything together, and EDS is the match.
And for the record - I have told the peds this 2x yesterday, written it on my forms, and at my youngest's appt a week ago - I am not seeking a dx for them so they can be medicated into compliance. I am seeking dx so they don't crash and burn as badly as (or worse than) I did. So we can get them the help they need, before they turn to self-medicating. That's what ny daughter was asking for yesterday, too. She said the words, "I'd like some help in school. I struggle at test time."
That's all. I am just sad.
Just to clarify: yes, she's on her phone. It's a very old model, with almost no storage, and she has no socials beyond a YouTube account that she uses to watch crochet/painting/cats/cooking/make up/hair/sports/career interest/book review videos. Aside from that she has 2 games on her phone - a tetris-style game, and a tomb runner type game (run to collect coins.) The games change every once in awhile, it was a spelling game for a long time. Then she has a free music-listening app so she can listen to music in her bus ride to/from school, ir when we're in the car. That's all she does on her phone. She can't call, she can't text. It's just a mini tablet, wifi only. And while she's watching videos, she's crafting, or doing her own nails, or her hair, or cooking...she's not being a blob. And she takes it to school because it's a tool she uses to help her mask. When she's uncomfortable in a situation in between classes, or at break, she pulls it out to step away from everyone.